Sunday, April 27, 2008

Sunday - Please let this be near the end

The last couple of days have been uneventful compared to our introduction to the NICU. They thought we might be able to head home on Friday. Our spirits were so high, and we were making the plans to head on out of here. Thursday night, though, we had a good notion that life wasn't going to go as we had hoped as A's weight had dipped HUGE. Friday night, we were disappointed with another low weight - though, the loss had lessened.

So, last night, we were very nervous to see A on the scale. We were ecstatic when we saw he had GAINED, nearly an ounce!! We did not have any expectations this morning, but all of a sudden - and don't get too excited here-- the doctor started saying things like "discharge" connected with the time frame of "this morning". She started to move on it immediately, and we were in jubilant shock. Everything was ready to go, and she began to do her last thing: the discharge exam. She pulled back the bandage to look at his sutures, and one of them was open and there was a bit of fluid draining... So, here we still are.

The good news, though, is that as long as the status of the suture doesn't change (i.e. does not pull more skin open, does not become inflamed and/or red, and he doesn't develop a fever), we are basically scheduled to go home tomorrow morning. (That, and he has to continue to gain weight.) I am finishing paperwork now for insurance, but other than that, it looks like we are on our way out - FINALLY.

Our NICU experience has been one that I never need to repeat. Unfortunately, we will have another hospital stay ahead of us in a couple of months when they put A's intestines back together again. Still, it will be planned and he will be healthy for that one... and we're going to be more than ready to get rid of his ostomy at that point.

On a good note, the folks here are really fantastic. Everyone is set up in a private room, so we've been able to spend the nights here. We have privacy all day to spend time together getting to know one another as a family - of course, we are more than anxious to do that on the outside of an intensive care unit, but we are lucky that we had the care that we did while here.

Maybe at some point in the future, we will blog more heartily about our feelings and experiences here. I've never endured so much fear and confusion. For now, though, it's time to go. I have to rock A. Please keep us in your thoughts for A to continue his healing and weight gain. He is a strong little guy, and we are so proud of him for making such great strides in just one week. (Thank God it wasn't any longer.) Thank you, again, for all of your thoughts and comments. We will never be able to truly express how much strength you all gave A's mommies while we've been here.

15 comments:

Laurie said...

Go baby go! He is being such a trooper and is so lucky to have mommies by his side.... I will keep my fingers crossed that the little man keeps on the positive trail :)

Anonymous said...

The 3 of you continue to be in my prayers.

Sending you love and light.

Rosany

possiblemaybe said...

Hoping so much that home is in your very near future. It is nearly unimaginable what you three have been through. A is such a strong little guy & you two are rockstars to have endured so much. Sending lots of hugs your way. xoxo.

Rachel said...

Thanks for the update. Wishing you the best of news for tomorrow morning.

j.k-c. said...

Continued healing thoughts to all of you. I'm so glad he is gaining weight and getting healthier!

Keri said...

I am so praying for any early ride home for you all - with gained weight and happy sutures. Again, I'm so sorry you've head to deal with so much but it's almost over. He's almost home.
Much love.

ohchicken said...

i SO look forward to the post that says "we are home". may it be tomorrow.

x

jay said...

sending lots of love and wishes for a "WE ARE HOME!" post! xxxx

*G* said...

Hooray for A growing bigger and stronger! Hoping you three are on your way home already :)

kwillmetta said...

Go little guy, grow big and strong. Your mommies need you at home.

Ali said...

Keeping you al in thought and prayer. Grow baby grow!

Holly said...

He's doing so great!
Keep up the good spirits! We are keeping them up on our end!!

Sending our love, Holly, Lois and Andrew1

tiff said...

Hoping your homecoming comes quickly. I am thinking about you 3 and holding you in my hearts! Much love to all of you!

Susanica said...

Hang in there. It's hard but you three all seem pretty stong. We ended up in the hosptial for a whole week when Danny was born when all along I'd imangined we'd be home hours after his birth. I guess we had to paradigm shift from sprint to marathon mode. Sending all kinds of postitive energy that A grows and heals just as he should. -Monica (and family)

bleu said...

Oh so glad that you all are finally going to be able to go home soon. This is so amazingly hard to go through, you are all so amazing and strong. Much much much love.