Since we went home on Monday, A has had some difficulty w/ his stools. Lots of blood. We had called emergency on Monday night and Erin talked to the surgery resident who wasn't concerned.
We then had a fantastic day yesterday. it was the best day of my life, I think. We went to the pediatrician, who wasn't concerned about the blood in his stools (we brought it with us) since he was back to yellow breast milk poop. We ran a couple of errands, and just worked to get into the swing of things back at home. In the middle of the night, though, the red/brown returned. We tried not to panic/wait it out as it had returned to yellow the day before. This morning, though, A wasn't eating well, so the surgeon's office saw us (after E called them THREE times and badgered them into an appointment.) The nurse decided, after looking at A, that she wanted the surgeon to take a look at him. Dr. L wasn't concerned about the blood, but said that A "just didn't look well" and that since there is such a "small margin of error", he wanted us back in the hospital.
E and I are taking turns rocking A. We are waiting for tests to come back. A was definitely dehydrated and we are waiting to see if:
- it is some sort of infection (requiring a 7-10 day course of antibiotics, probably)
- he has mal-absorption issues related to his surgery (could require a range of treatments)
- or to see if it was just dehydration (E and I were just talking and we have no idea what this would mean for us).
So, here we are again. Tired, feeling a bit defeated. We are, at least, glad to back in the same NICU where we started (there was a chance we'd have to go to a different one.) We are also relieved that G's daycare snuck her in for Friday as well as her usual Thursday visit. That gives us until Saturday to figure out how to arrange our lives. E is going to finagle work as best as she can.
No parents should have to go through this. Neither should any new little life to this world. A is still our little fighter. He is not a sickly child overall, we just have to get this under control.